In this week’s episode of Health Check, we meet Rylae Ann Poulin and her family who lives in Thailand.
This program is available on the Health Check Page and is available NOW On-Demand until Wednesday the 18th of January. It will also be broadcast on Sunday the 15th of January in Phuket at 8:00 AM on 91.5 FM and 102.5 FM and Online via the Internet radio portals.
The Poulin family tell us about their long quest to have their little girl Rylae Ann diagnosed with an incredibly rare disease.
Just the beginning of the Poulin Family story.
Rylae Ann was fortunate enough to have gene therapy on a clinical trial in Taiwan – and it has transformed her life – but it’s not a treatment that’s available to everyone.
Joining presenter Smitha Mundasad in the studio is family doctor Graham Easton, who’ll discuss why that’s the case – and what the risks are around this experimental treatment and the ethics of diagnosing rare conditions.
We’ll also hear from a scientist in Vancouver on her fascinating research which has discovered a compound in a sea sponge that blocks Covid-19 in human cells in the lab.
And we’ll have the latest on the virus in China, as concerns grow about its spread ahead of the Lunar New Year, and a rather unusual study about a very small trial in London involving scars being treated using transplanted hair.
Presenter: Smitha Mundasad Producer: Gerry Holt